Wednesday, March 21, 2018

Snow days are for coffee, blogging and cooking!

Snow, lots and lots of it is coming down fairly quickly here in my little area of south-central Pennsylvania. Which means one thing for me a SNOW DAY!


I got to enjoy a nice leisurely cup of coffee this morning in my PJ's at 7:30.
Then I had to dig my way out to the chicken coop to let out the girls. My girls were not that excited about the snow. 


A highlight of a snow day for me is getting to spend the school day with
these two kiddos. So Lucas and I are navigating Biology and Literary 
Analysis & Comprehension. Hannah is doing Physics and Honors British 
& World Literature.

While the kids are plugging away at these subjects I also get to cook!
So for lunch, we are having deconstructed pizza and brownies. For dinner, simmering away in the crockpot is a big batch of buffalo chicken soup!




Food and nourishment we will need for the big dig out. The soup and pizza are Keto recipes. For the pizza, I used Rotel tomatoes instead of just diced ones. Lucas noticed the chilies right away. I said they add a little kick, he said more like a solar flare. I just love this kid sensory issues and all, he makes our lives interesting!

How are you spending your snow day?




Saturday, March 3, 2018

Sometimes life is a blur & Remicade seems to hold a lot of weight

Last weekend was a blur. It was filled with the usual things like driving
practice and Company dance practice for Hannah and then some.  

On Thursday Lucas started with what appeared to a small cold, nothing too 
worrisome. By Friday evening his temperature had risen to 102.6... okay 
not too scary but a red flag because although he has had small fevers, 
he does not typically present with a fever while flaring. However,
since he had a Remicade infusion 2 weeks prior and with the addition
of methotrexate infection is a real possibility. So I attempted to schedule
a doctors appointment for Saturday. Saturday appointments were filled
and they decided to see him Sunday morning. Lucas's body had different
plans. Around 8:30 Saturday evening even with fever medication all day
long his temperature spiked to 103.9. So more medication administered
and his temp check an hour later registered 104.3. That meant a trip to
the Emergency Department.

Thankfully the ED was not very busy and he was triaged fairly quickly.
Usually, I have to go into great detail about the medications these guys take
almost no one has heard of Actemra, not so with Remicade. Because
of the name Remicade and the combo of Remicade and Methotrexate
together this was all taken very seriously. Which is crazy because any biologic should be taken seriously. Lots of bloodwork, blood cultures 
were done together with a chest x-ray and nasal swab.

The final verdict RSV and pneumonia. So after two rounds of IV antibiotics,
he was admitted upstairs to the pediatric floor.  We stayed on the floor
for another round of IV antibiotics and lab work before being released 
home with oral antibiotics and instructions to hold his methotrexate this
week.

I am sitting in my comfy spot thankful this weekend is looking much different.
Yes, it's still filled with driving practice and company dance practice, errands
a youth group event and church. I'll take it over last weekends type of busy hands down. 

Last weekend

  Later in the week.