I think I am already suffering a bit of post Christmas let down... I am
already dreading taking down the tree and putting away decorations.
Christmas seemed to come so quickly this year. I was sitting next to
my 5 year old niece Christmas night and she turned to me and said 'I
don't want Christmas to be over' and I had to say 'Me too!'
This year it was just Cody, Lucas, and I who made the trip to the NIH.
And we STILL don't have any results from the exome sequencing! If it
seems like I am whining ... well I am I guess.
Cody is again having issues again with hematuria and we were not
able to be seen by Urology while there. Which means trying to get him in somewhere here before he heads back to school on the 10th while I am
off work. As I was talking to the receptionist this morning she said you
know they will probably want a CT scan or something? Argh! well he has
been trying to get this taken care of since the 18th... so we are settling
on an appointment the afternoon of the 7th after Luke's infusion... and
maybe some testing when he comes home for Spring Break and if it
needs to be done before then well I guess we'll figure it out somehow.
It's a bit more unnerving this time because it will be bright red after any
physical activity and he has protein leaking as well.
Hannah danced in the Nutcracker and was fabulous! She just pushes
through and amazes me.
My senior nursing student made the Deans list for the 7th semester
in a row! Woot Woot! She is just the greatest girl (yes I am totally
biased)!
Lucas had his first infusion of Orencia on the 22nd at Hershey and we
quickly came home so to meet the home health nurse for Hannah's at
the house. Hannah had a bit of an odd reaction this time ~ at least
we are guessing it was reaction because no one else got sick. Lucas
has 2 more to do at the hospital and then he can have them at home
with H. He is looking forward to baseball season already, me I
am enjoying the break. :)
So with it feels like Christmas came and went far too quickly. However
I can still adore Him.
