Tonight finds me fairly exhausted. This morning at 5:30 am you could find me in the family room crying out to God and asking for mercy. Our Lucas has SPD or Sensory Processing Disorder. And although it is not a constant issue but falling asleep and staying asleep can sometimes be a big struggle for him. Early.. very early this morning 1:30 am to be exact he was wide awake. I believe he finally crashed somewhere between 5:30 and 6:00 am. Unfortunately everyone in the house was awake at some point during those early morning hours. Needless to say we all slept through the alarm for church and since I work on Sundays it's been a long day. This is going to be a difficult week for Mike's biopsy on Tuesday. Thankfully Cody is feeling well! H has had a few issues with jaw pain and knee pain, but she felt good enough to go on an outing with a friend so she seems to be turning the corner. So tonight we sleep... well at least I hope so! Tonight we are trying a fan for some white noise. It may be time to invest in that weighted blanket.
22 days... Cody is now 22 days into a "flare"? We had thought after the infusion of the 21st he would be better, but although his temp dropped during the infusion he was running a low grade temp again the next day. No one else in the house is sick so it has to be his issue. The big problem right now is the pain. We have tried a couple different ones now. Neurontin helped with the pain but totally knocked him out. Cymbalta does not work as well but maybe it needs to build up in his system? It is so frustrating to see him in pain and not be able to do anything! Its also discouraging to ask "How do you feel today?" and hear "I'm in a lot of pain".....UGH! Meanwhile we are facing another bump in the road. Michael went to the doctors at the end of January with what we thought was going to be another kidney stone. He had blood in his urine and back pain. They did an x-ray and could not find any stones. What they did find upon exam is a lump in his prostate. Today he had a urology appointment. The urologist did his PSA level (PSA is a protein produced by both normal and cancerous prostate cells. A high level of PSA can be a sign of cancer) His was a 7.1 at his age it is supposed to be under 4. He will be having a biopsy on the 26th. Trying to not worry until it's warranted is easier said than done.
