Saturday, January 21, 2017

   Winter is a time of promise because there is so little to do - or because you can now and then permit yourself the luxury of thinking so. ~ Stanley Crawford

    We are already halfway through January! We have yet to have any real snow, just ice, fog, and of course rain. 
We have actually had rain a lot in the past two weeks making it bleak and dreary. All the Christmas decorations are put away and it is a tad depressing.
    Just a few years ago snow days were a bonus,
a celebration even. Snow days meant a time to shelve
our books for a few hours and play. Then later bundled 
up with cocoa and blankets we could get back to work. 
Homeschooling meant we didn't lose school days to the
weather just a lovely break in the schedule.
    These days as I have to travel to work snow days don't hold as much appeal as they use to. So although I am 
not longing for snow, a break in the rain would be nice.
    For those of you asking about Cody's kidney issues ~ 
we are still seeking answers. He will be home in February
and we will have another round of doctor appointments 
to fit in and more tests to run. He is,however, doing well and not experiencing much discomfort from them.
    Our newest medical challenge has been Hannah's red 
blood cells. Last month her iron level was at 14 and she was extremely symptomatic over Christmas break. They then went to 53 and after a trip to the Hematologist, it was decided we should double her iron supplements. Only on Wednesday, we discovered that after 7 days of a double dose, she was now at 173 and way above normal yet her hematocrit and hemoglobin levels have dropped.
    Our rheumatologist is now thinking she may have 
what they refer to as 'anemia of chronic disease', which 
is not an iron deficiency but a block in iron transport 
within the body that impairs hemoglobin and red blood 
cell production. Iron infusions can overcome this block. 
It is unclear if her symptoms relate to this anemia or 
to the SoJIA, the only way to find out is to eventually try 
the iron infusions. So another enigma.
      These kids are amazing and I am in awe as I watch
them grow. They are always teaching me way more than 
teach them.