Forging ahead

 

  I have thought more than once this past week~ I am not good at this motherhood job.  It was just a normal week not anymore crazy or hectic than any other.

   Of course it was an infusion week and truthfully infusions weeks (or shot
days for that matter) always give me pause. For many years now I made
doctor appointments, picked medications up, fought insurance companies for treatments, prepared and given shots, communicated with doctors, stood by while tests are performed and infusions administered. That part of my job has shifted for at least two of the four kiddos ~ now we have entered into teaching how to be a self advocate. Honestly that is exhausting... 

    However, it is where we are at and like it or not I am in the process of
teaching two young adults to self advocate. Rachel has been doing fairly
well although after being with a pediatric specialist we are finding the adult
specialists are not nearly as helpful. So with Cody's more complex issues
it is a bit unnerving to all of a sudden give him the wheel. 

    It is also highly unnerving that he is beginning his foray into college. Yet this fall the plan is for him to move into a college two hours from home. He
is even pursuing an oversees mission trip this summer. So my job of late
is to be the mean mom. You know, hard-nosed and hard lined, pushing
him to do the outside of his comfort zone things. The accusation, "Are you using applied behavior analysis on me?" has been uttered more than once. :)

    This coming week we head to the National Institutes of Health. This time he signed all the scary consent forms....here we are forging ahead to a new chapter in life.