I have been reading over past blog posts and realized that in general January through March are not a good months for us. In past years during this time we have faced cancer, heart disease, as well as the weather during this period is not the easiest for a disease with chronic arthritis.
This past March did not stray off course. Our sweet Rachel is in her last
couple months of nursing school. I had a call early in the week saying that
she was sick maybe the flu? By that Friday she was admitted to the hospital.
She has had various issues with low platelets, inflammation and arthritis
in the past ~ all maybe a part of this mystery condition we struggle with.
Apparently what happened was she started with an allergic reaction to a
sulfa drug which then cause a systemic response that basically shut down her bone marrow. Scary stuff.
Rachel has some wonderful friends. Friends at school who were with
her daily, some far away that checked in daily, and some along with
family traveled the distance to check on her.
Me, I didn't think it could get any harder than dropping Cody off for
college 5 days after having his chest tube removed... bringing her back after this ranks right up there.
I had an epiphany last week. it has taken me about 20 years but I
know how to parent of a child with chronic illness... now I need to learn
how to be a parent of an adult with a chronic illness and its not easy.
It is hard stepping back or even knowing when to step back and I am
sure I did not do a great deal of things right this last experience. Hopefully
they will give me grace as I travel this road.
Here’s to you
You were pink or blue
And everything I wanted
Here’s to you
Never sleeping through
From midnight till the morning
Had to crawl before you walked
Before you ran
Before I knew it
You were trying to free your fingers from my hand
‘Cause you could it on your own now somehow
Slow down
Won’t you stay here a minute more
I know you want to walk through the door
But it’s all too fast
Let’s make it last a little while
I pointed to the sky and now you wanna fly
I am your biggest fan
I hope you know I am
But do you think you can somehow
Slow down
Here’s to you
Every missing tooth
Every bedtime story
Here’s to Barbie cars, light saber wars Sleeping in on Sunday
Had to crawl
Before you walked
Before you ran
Before I knew it
You were teaching me
The only thing love can
Hold hands through it
When it’s scary, you’ve got me
Slow down
Won’t you stay here a minute more
I know you want to walk through the door
But it’s all too fast
Let’s make it last a little while
I pointed to the sky and now you wanna fly
I am your biggest fan
I hope you know I am
But do you think you can somehow
Slow down
Please don’t roll your eyes at me
I know I’m embarrassing But someday you’ll understand
You’ll hold a little hand
Ask them if they can
I am your biggest fan
I hope you know I am
But do you think you can
Somehow
Slow down
Slow down
